In ancient home videos of the Dell family, there’s shot after shot of my sister Shelby clinging to me tightly while I cringe. That was a good illustration of our relationship, until recently. I was diagnosed with cystic fibrosis a few …
I’ve seen videos of people with cystic fibrosis, messaged other patients on the internet, and knew some as a child. But since the early years I barely have any memory of, I haven’t verbally spoken with a CFer. I had …
Life with CF is constant war. I write about how the disease has traumatized me.
I'm admittedly tired of insensitivities and misconceptions about CF from the relatively-healthy community.
I was exposed to plenty of fentanyl over the past couple of years. It was heavenly. The withdrawals were not.
I can appreciate that alternative, or supplemental, medicine is useful in many cases. But that doesn't mean you should take advantage of the chronically ill to sell wares.
My joy comes from a combination of both small and big things. I discuss the lifestyle changes that amp me.