I’m dead-beat. Bone-tired. Wasted. But I ain’t dead-dead and I ain’t lung-tired. And with my lung transplant, I guess you could say I’m recycled, rather than wasted. Maybe these jokes don’t make sense. I am exhausted, after all. My glasses …
Life After My Lung Transplant Has Been Incredible
I won’t lie. The first two months after my double-lung transplant were rough. I wasn’t in much pain, but my body was struggling to adjust to the cornucopia of transplant drugs, and I experienced the torment of withdrawal from the powerful …
Read More "Life After My Lung Transplant Has Been Incredible"
If You Have CF, You Know These 6 Doctors
You’ll meet legions of doctors throughout your life with cystic fibrosis. You’ll encounter doctors you adore and who will save your life countless times. And you’ll encounter some who make life a nightmare. Here are six “characters” you’re bound to meet, …
Dear CF Parents:
Dear parent, I know you’re afraid. My parents were afraid, too. My mom left a college biology class crying; the lesson on genetics included the life expectancy of a child with cystic fibrosis. There’s an old home video of her talking to Baby Bradley …
Don’t Forget the Sibling’s Role in the Chronic Illness Fight
In ancient home videos of the Dell family, there’s shot after shot of my sister Shelby clinging to me tightly while I cringe. That was a good illustration of our relationship, until recently. I was diagnosed with cystic fibrosis a few …
Read More "Don’t Forget the Sibling’s Role in the Chronic Illness Fight"
I Love the Cystic Fibrosis Community
I’ve seen videos of people with cystic fibrosis, messaged other patients on the internet, and knew some as a child. But since the early years I barely have any memory of, I haven’t verbally spoken with a CFer. I had …
Living with CF Has Traumatized Me
Life with CF is constant war. I write about how the disease has traumatized me.
